Community to go orange for Luke’s Army

PUBLISHED: 12:00 25 January 2018

Staff at Muscular Dystrophy UK prepare for Go Orange day.

Staff at Muscular Dystrophy UK prepare for Go Orange day.

Archant

A sea of orange will fill schools and businesses across North Somerset as people join forces to support a four-year-old boy with muscular dystrophy.

A number of organisations across the town are taking part in Muscular Dystrophy UK’s national Go Orange day to support Luke, from Nailsea, who has been diagnosed with the muscle-wasting disease.

His mum, Lisa Cramphorn, set up the Luke’s Army fundraising campaign to support research aimed at finding a cure and slowing down the condition.

On February 1, pupils at Nailsea School, Golden Valley, Wraxall, Birdwell, Fairfield and Northleaze schools will swap their uniforms for orange clothes in return for a donation to Muscular Dystrophy UK.

Gillian Jones, the charity’s regional development manager, said: “We’re so grateful for all the schools and businesses in and around Nailsea who have taken this cause to their hearts and will be joining in with Go Orange.

“It is thanks to fundraisers like these that we are able to continue to fund pioneering research into potential treatments for muscle-wasting conditions, as well as supporting families like Luke’s.”

Lisa said Luke’s diagnosis ‘rocked their world’ and the only thing which has kept them positive is the hope of medical advances,

She set up Luke’s Army in September last year and family and friends have raised more than £20,000 so far.

Duchenne muscular dystrophy is a rare muscle-wasting condition which decreases the life expectancy of sufferers as it affects all muscles including the heart and lungs.

There is currently no cure, but Luke’s family have pinned their hopes on research and clinical trials which are aimed at slowing down the progression of the disease.

Lisa said: “Our hope is that with the money raised, Luke and other boys will be able to turn around and say ‘I used to have muscular dystrophy’.

Family and friends put on a fundraising disco last year and a Santa run.

They are now appealing for schools, businesses and community groups to support Go Orange day for Muscular Dystrophy UK.

There is still time to sign up for the event, at www.musculardystrophyuk.org/go-orange


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