Son's death inspires Portishead parents to run 10K in his memory
PUBLISHED: 06:00 24 February 2018
Simplyhealth Great Bristol 10K
Parents of a Portishead boy who lost his battle with a brain tumor last year will be lacing up their running shoes to raise money for a charity which helped him in his final days.
Ben Pritchard, as previously reported by the Times, died in November but his mother Sarah and father Shane are using his memory as an inspiration to raise money,
Ben, who was eight years old when he succumbed to an aggressive tumor, stayed at Children Hospice South West’s (CHSW’s) Charlton Farm in Wraxall.
As a thank you to CHSW, Sarah and Shane will take part in the Bristol 10k and family run on May 13.
Shane said: “Ben was a fit and healthy young boy, he was popular, was excelling at Portishead Primary School and loved nothing more than playing football and it was rare to see him in anything other than a Bristol City kit.
“He came in from the garden after watching his football team and said he couldn’t move his arm properly.
“He was taken to A&E where tests showed he had a brain tumour called Diffuse Intrinsic Pontine Glioma, an extremely rare and aggressive cancer.
“It was inoperable, incurable and we were told at best Ben would have 10 months to a year to live.
“We are raising money in Ben’s name because we stayed at Charlton Farm for the last days of Ben’s life. Being there with its amazing staff in a beautiful setting meant we were just able to be a family without worrying about medication, appointments, care needs or chores.
“We have happy memories that will last us a lifetime and Ben was very happy there, despite being very unwell.
“We were well supported by staff there and doing so alone would have been unbearable, but we were never alone and we will be eternally grateful.
“We want to use our experience to further enhance the amazing facilities at Charlton Farm, in particular end of life care.”
The family have raised more than £10,000 already by completing several challenges, including the Boxing Day run in Clevedon.
To sponsor the Pritchards or to donate to CHSW, log on to www.justgiving.com/fundraising/bemoreben