Can you help Edith walk? Family seeks £14,000 to help disabled girl
PUBLISHED: 18:05 12 July 2019 | UPDATED: 18:05 12 July 2019
Parents of a profoundly disabled girl have turned to crowdfunding to raise cash for a life-changing machine which may allow their daughter to walk for the first time.
Five-year-old Edith Andres was born with an incredibly rare brain condition, which has made her hypotonic, and means she suffers from developmental delay.
Edith cannot move unaided, speak, eat, or perform basic tasks easily.
The Andres' hope to raise £14,000 to buy an Innowalk. The machine will allow Edith to exercise by moving her legs and arms for her, something her parents say may help her learn to walk, as well as keep tertiary conditions at bay, such as issues with her heart and lungs, which could develop as a result of her immobility.
Edith's father, Dan Andres, said: "The Innowalk will help Edith by working her muscles for her and giving her the exercise she vitally needs and build up her muscles too.
"It will also give her the feeling of walking and hopefully help her brain make the connections it needs so she can learn to walk independently."
Doctors still do not know what the root cause of Edith's issues are, and appear to be no closer to a conclusion, despite her being a part of the 100,000 Genomes Project for the past three years.
However, despite not having a definitive diagnosis her parents remain hopeful for the future, and see every day with her as a gift.
Edith's mother, Kirsty Andres, told the Times: "No-one knows her potential and every day we see progress and she has only ever gone forward.
"She has learned many things that most just do naturally, like sitting, and stepping with an aid, pushing buttons and choosing from objects and pictures.
"She knows how to smile and laugh and she can certainly cut some shapes on the dance floor.
"We don't know what the future will bring but that's not a bad thing, we remain positive and hopeful one day little E may walk, talk or be able to communicate in her own little way."
Dan added: "Even with her condition Edith's beautiful personality, and sense of humour shines through. Her little smirks and giggles, and playful behaviour, shows there is more going on inside her head."