Clevedon man starts 28-day challenge to shine light on 'hideous disease'
PUBLISHED: 11:31 02 February 2019 | UPDATED: 11:31 02 February 2019
A Clevedon man will row 5km, run five miles and swim one mile a day to raise awareness of the 'devil's disease' in support of his girlfriend's brother.
Daniel Stewart, aged 35, will take on the Endure 2 Cure challenge to raise awareness of Huntington’s disease which has had a close impact on his family.
Daniel’s girlfriend Amy Dickson lost her father Ian in 2009 to the condition and now her brother, Stuart Dickson, also aged 35, has been diagnosed with the disease.
The young father-of-two, from Worle, was diagnosed in January last year and the family has had to come face-to-face with the challenges ahead.
To show his support, Daniel will be embarking on a 28-day challenge through February at DoubleTree by Hilton, Cadbury House.
He will need to complete 5,000m of rowing, run five miles and swim the equivalent of a mile each day.
Daniel told the Times: “My hopes are to raise more awareness of the disease, known as the devil’s disease.
“I have closely seen the impact it has had on the whole family, and I have seen their courage and continued hope for one day to have a cure.
“I feel more awareness needs to be made of this hideous disease.”
Huntington’s disease is a ‘devastating’ brain condition which is genetically inherited and affects at least 6,700 people in England and Wales.
It is caused by a faulty gene in your DNA and it can affect someone’s nervous system.
He added: “As important as it is to raise much-needed funds, my efforts are not solely about this.
“I think we need to raise awareness of what Huntington’s disease is and how it affects families before asking for funds.
“Once people know on a personal level how it affects people, they will have a better understanding of how they can help.”
The Huntington’s Disease Association does offer support and two visits a year.
However, Hannah Dickson, Stuart’s wife, has launched her own support group which meets once a month and fundraises for the charity.
Find out more about the group by searching Weston and Somerset Huntington’s Support Group on Facebook.
The next support group meeting will be held at Weston Cricket Club, in Devonshire Road, tomorrow evening (Thursday) at 7.15pm.