Five-year-old's family needs £10,000 to give him bedroom to help with illness
PUBLISHED: 18:00 20 July 2019
The parents of a 'bright and clever' five-year-old boy with a life-limiting condition are appealing for help to raise £10,000 to massively improve his life at home.
Riley Nash, from Nailsea, was born with a condition called cytomegalovirus.
The virus affects his mobility, hearing and cognitive development.
Riley cannot sit, talk or stand unaided and suffers from epilepsy and needs 24/7 care.
His father Ian, aged 37, told the Times, the funds raised will go towards a single-storey extension which will have a fully adapted bedroom and bathroom for Riley.
The self-employed builder added: "It's really tough on all of us and it has taken sometime for us to actually understand his condition and how we can help him.
"He's just turned five and we can see how our home is too small to navigate him around.
"There's just not enough space for the equipment he needs on a day-to-day basis.
"For example, to change him we have to carry him down the stairs where we've had to place his changing table.
"My wife Debbie quit her full-time job to become his carer so we are just relying on my salary.
"The extra space would really help my wife and his carer take care of him.
"The space would also allow him to move around with his equipment which he cannot do at the moment."
Sullivans Heroes charity has pledged £750 towards the building work.
The charity works to support families with disabled children who need to adapt their homes to meet the care and health requirements for the child.
Ian said they appreciate the donation but it is still a long way from their target.
He added: "We have submited plans for permission for the work and hope to have a response soon.
"We just want to make home life for him as comfortable as possible.
"He is a very clever and bright boy who loves to play with his seven-year-old sister Charlie.
"As he grows up, the costs of equipment he needs, will also grow too.
"Simple things like toys can end up costing four times more because they have to be adapted so he can use them."
To donate money, visit www.gofundme.com/f/home-alterations-for-our-amazing-son-riley