Tracey Fowler, Reporter
Thursday, May 17, 2012
A PORTISHEAD teenager has set up a support group for people with dwarfism.
On Saturday, Danielle Webb of Leigh View Road, will host her first fundraising event, presenting popular covers band Mid Life Crisis at Clarence House in the town’s High Street.
The Gordano School student has the condition Achondroplasia, which is a form of dwarfism and has caused the bone tissue in her arms and legs to not develop properly.
The 13-year-old said: “Apart from my size I am just like any other teenager, I enjoy hanging out with friends, shopping and playing my music too loud.”
Danielle sometimes finds it hard living in a world which is built for people twice her size and has now reached an age when she would like to have some friends who are also little and share similar experiences.
As a result, Danielle and her mum Michelle, decided to help create a new support group for people in the area with dwarfism and their families and friends.
The group is part of a national organisation called Little People UK, set up by Star Wars and Life’s Too Short actor Warwick Davis, to raise awareness, give support and offer advice to people affected by dwarfism.
Being part of the group, which set up in February, has provided Danielle with the opportunity to make some new friends and learn even more about her own condition as well as other forms of dwarfism.
Michelle and Danielle now hope to help build a network across the South West and have so far made contact with six families in the area.
Danielle added: “One of the things I love most about Little People UK is it has shown me that people with dwarfism can and do lead normal lives, they get married and have children, they have a wide variety of jobs and have their own homes, it has made me feel very positive about my own future and I no longer feel so alone.”
Tickets for Mid Life Crisis, priced £5 each to include a buffet supper, can bought by calling 07507 733965, emailing firstname.lastname@example.org or at the door.
Proceeds from the evening, which is open to everyone, will go to Little People UK.